Guest blog by Stephen Jenner
A huge fund raising event for 7 year old Oakley Orange has been announced at Headcorn Airport on the 10th April.
Oakley is the little boy fighting for his life after an allergic reaction to medication. Rushed to hospital after a rash appeared on his chest, his parents Steven and Lorraine watched in horror as their son became unrecognisable over the next 24 hours.
He was diagnosed with the rare life-threatening skin condition called Stevens Johnson Syndrome (SJS), where the top layer of skin becomes detached from the lower layers.
Oakley’s condition rapidly deteriorated to the worst form of the condition, known as Tens, and he had to be transferred to a specialist burns hospital. SJS develops into Tens when more than 30% of skin is lost; Oakley has lost 100% of his skin, as well as his fingernails, toenails and hair.
Funds are being raised to send Oakley Orange and his family to Florida, with SkyHigh Radio taking up the lead in helping raise this money. The event at Headcorn is a tandem parachute jump and if you’d like to be involved, or just lend your moral and financial support, please get in touch via the Facebook page or donate here.